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COVID-19 & ME/CFS

So many feelings…

So little energy to do anything about it.

If you have a fundamental antipathy for the concept of one minute meditations designed for people with ME/CFS then this site is for you. I know you probably don’t want one more well meaning person offering you suggestions on what will help.

But desperate times call for desperate measures. For those of us who are normally house or bed bound we need a little counter programming to those offering ways to get rid of their bottled up energy while in isolation. Even if all I mange to do is annoy you then at least I’ve provided a 60 second distraction from a pandemic. In fact, if you’re really annoyed continue the distraction and participate in the comments section on any of my blogs or better yet, tell me your story.

I am learning that my default setting during a pandemic is sarcasm with a side serving of off beat waggishness. That is sitting just above a layer of sadness for those suffering and a bottom layer of perfectly normal existential dread. My attempts at levity are in no way about minimising your pain or distress. Let me know what default settings are getting you through?

Latest from the Blog

ME Wishes

A friend calls you. After you say, “hello.” The friend replies, “you don’t have to tell me. I can hear it in your voice.” What would you hope friends and family could intuitively understand about what you’re going through?

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#MillionsMissing

I actually thought I was used to being missing, that I’d found a way to adjust to my reality. I honestly thought it would only take a few minutes to fill out the #MMSelfies form as part of the millions missing campaign for ME/CFS Awareness Day. The form developed by Emerge Australia asked for a response to a simple question – What are you missing from?

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Serious ME/CFS Contributors

There are so many amazing people around the world working on ME/CFS research, advocacy and community support. The first site I will highlight is How to get on. Its incredibility informative especially for those in the USA and its also beautifully illustrated.

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