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COVID-19 & ME/CFS

So many feelings…

So little energy to do anything about it.

If you have a fundamental antipathy for the concept of one minute meditations designed for people with ME/CFS then this site is for you. I know you probably don’t want one more well meaning person offering you suggestions on what will help.

But desperate times call for desperate measures. For those of us who are normally house or bed bound we need a little counter programming to those offering ways to get rid of their bottled up energy while in isolation. Even if all I mange to do is annoy you then at least I’ve provided a 60 second distraction from a pandemic. In fact, if you’re really annoyed continue the distraction and participate in the comments section on any of my blogs or better yet, tell me your story.

I am learning that my default setting during a pandemic is sarcasm with a side serving of off beat waggishness. That is sitting just above a layer of sadness for those suffering and a bottom layer of perfectly normal existential dread. My attempts at levity are in no way about minimising your pain or distress. Let me know what default settings are getting you through?

Latest from the Blog

Is acceptance the key or the lock?

There is a constant knot in the pit of my stomach. Hidden in the dark murky place where emotions mix and churn as they evade logic and reason. Holding onto one end of the knot is the person I am now, tugging at the other end is the person I want to be. Accepting I have to let go of the person I want to be is in theory the pathway towards the chronic illness jackpot of psychological flexibility.

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Black Lives Matter

Unable to attend #BlackLivesMatter protests but want to find a way to support the movement take a look at the range of options compiled by Black Lives Matter Australia. I also recommend taking a look at a great article by By Wilhelmina Jenkins – Unseen: Black people living with ME

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ME Wishes

A friend calls you. After you say, “hello.” The friend replies, “you don’t have to tell me. I can hear it in your voice.” What would you hope friends and family could intuitively understand about what you’re going through?

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